A Suwannee County, Florida man has come up with a creative way to raise money and awareness of a disease that's attacking his son.

He's going to scream for help from the mountain tops. Literally.

Five year old Evan plays on the swing like a normal kid.

But, his parents say it was while he was out playing with other children that they say they noticed things weren't normal.

Evans mother, Kimberly Procko said, "Walking, jumping wasn't coming together. He kept falling down."

Evan was diagnosed with Duchenne Muscular Dystrophy 18 months ago.

It's a genetic disorder that causes rapid muscle loss and weakness, the most lethal genetic disorder among children worldwide.

Evan's father, Bill Procko, said, "His life span is practically high school. He says he want so to be a paramedic, he says he wants to be a doctor. I smile and I'm like, you go, you're going to do it. Then I get that twist in my stomach and I say, we're going to do something about this."

What Procko is doing about it is climbing Mt. Rainier in Washington State, which is 14,411 feet tall.

He and eleven other parents, researchers and friends from around the world are trying to raise $14,411 each to help find a cure for the disease.

The Prockos say if there's no cure, Evan could be in a wheelchair by age 12.

"Right now, he can come up and hug me real strong. he's really loving and he just wants to sunuggle and hug. i want to always feel that strenght of his arms around me. I don't want that to get weak." Said, Mrs. Procko.

The Prockos say Duchenne is severely under-funded compared to other children's diseases.

But, they say they believe a cure is around the corner and they hope the mountain climb will help them get there.

Mr. Procko is leaving Suwannee County Thursday to go to Washington. The climb will be Monday and Tuesday.

He is scheduled to be back home with his family Wednesday, September 3rd.

Anyone who would like to contribute to the research and quest for a cure for Duchenne, visit www.firstgiving.com/williamprocko.